Francesca finished her batch of steroids on Tuesday morning. During the weekend and mainly on Monday she was complaining of not feeling well, with sore legs a headache etc..... I put it down to the chemo and steroids (she has one called Vincristine that makes her joints sore). She had a temperature on Monday night but it was gone in the morning so we left it. Fran was still complaining a bit by Wednesday so I called the lovely Rochelle at GOS who said really she should go to hospital for a review and that she'd probably need IV antibiotics. So, that's where we are! As is often the case with these things they don't seem to be able to find the source but it is likely there is an underlying infection somewhere. Hopefully Fran will have a temperature free day today so that she can come home on oral antibiotics tomorrow (supposed to be a really hot day so we'd rather not be in the hospital)!
Francesca is in great humour though making cards and paintings for all the Nurses and Doctors - she likes to leave her stamp at Lewisham each time we visit!
The pictures here are of Fran and Charlie on her bed then Franceseca and the most wonderful play specialist Michelle. Michelle (along with Sharon and Vicky) is fantastic, she takes so much time out of her day to spend with Francesca, bringing along puppets, paints, sticking etc. The play specialists at Lewisham are just brilliant! The impact it has on Francesca's stay is nothing but positive so we are really grateful for them.
Francesca is in great humour though making cards and paintings for all the Nurses and Doctors - she likes to leave her stamp at Lewisham each time we visit!
The pictures here are of Fran and Charlie on her bed then Franceseca and the most wonderful play specialist Michelle. Michelle (along with Sharon and Vicky) is fantastic, she takes so much time out of her day to spend with Francesca, bringing along puppets, paints, sticking etc. The play specialists at Lewisham are just brilliant! The impact it has on Francesca's stay is nothing but positive so we are really grateful for them.
3 comments:
Hi Jayne,
just opened up your posting today (am working at home today and have Francesca's blog on my tabs)sorry to hear you are back in hospital, such lovely weather, so I will keep my fingers crossed that you get home tomorrow. Anne and James are in Oxfordhire this weekend for James's sister's wedding, but I am up in London to go to the globe next weekend. We are meeting Pat and four friends from Norfolk so am looking forward to a nice day hopefully. Kepp su all posted, I taek a quick peep most days,
Give Fran and Charlie my love,
Kate
Hi guys, I reconise that Play specialist...
Got home and straight away looked the website up and put it on my favourites.
Going to show luke this weekend,wot he be impressed and of course you met him didn't you Fran..?
Well, going to go now,
Glad you enjoyed the magic man today fran.
Love to you all,
Michelle (your Play lady)
Hi,
First time on your site today. Francesca is a beautiful, smiley little girl! We have just started on this horrible road as our 2year old son JOsh was diagnosed with ALL a few weeks ago. He finishes induction next week with the dreaded MRD test. His WBC and ANC counts are not coming up even though the platelets and RBCs have so I have convinced myself he will be high risk. How did you stop your mind wandering onto more negative thoughts because I am struggling at the moment. He was the happiest boy alive before diagnosis and I don't recognise his personality anymore since starting steroids.
I was given hope in that you made it on holiday! Such a lovely thought to hold on to. We also hae a 4 year old daughter who is a bit left out sometimes.
I admire your strength. Please write back if you find the time as I know how preoccupied you must be
Love Jo
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