Well, we got home from Lewisham on Sunday. Francesca hadn't had a temperature for over 24 hours so we were discharged - yippee!!!!! Until....... Monday.
Yesterday I had a call from the hospital to say that a blood culture they had taken on Saturday had shown an infection that would most likely need to be treated (these blood tests typically take 48 hours to grow any infection) so could we pop back for another blood culture to be taken. Francesca and I popped in only to be told that actually we'd need to stay as Fran needed to start 3 different IV antibiotics that night. It has meant that we haven't been able to go to GOS today for chemo as her counts aren't good enough and they need to ascertain exactly what type of infection Fran has to treat it accordingly. If it is a central line infection it is really important it is dealt with as efficiently as possible.
It looks as though we could be in patients for up to ten nights - hopefully we will be out in time for Francesca's birthday. The doctors are great though and with them we will manage her treatment to allow Fran as much 'home time' as possible. The community team will be able to come to our house and administer some of the antibiotics so at least we're not stuck in Lewisham.
We are so lucky, I've said it before and will many times again, but Francesca is wonderful at taking it all day by day and accepting that this is life for now. She's not naughty, she sometimes gets bored and cross but on the whole she really is the smiling girl you see in these pictures! (and yes, I am a very proud Mummy!!)
Stuart and I are actually quite pleased that something grew in her cultures as we were beginning to become quite concerned that she was getting temperatures for no apparent reason - not that we like spending time at Lewisham but at least we know what we are dealing with.
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