Fran has started back regularly at Great Ormond Street for her next batch of intensive treatment. The first couple of weeks went well, then last week she got an ear infection which, fortunately has been treated with oral antibiotics (no in-patient time!!). She was back at GOS on Tuesday and is on steroids again for a week, the dosage is fine for her so she's not having the stomach problems of a couple of weeks ago.
It has been a tough week for us all, Francesca has really struggled and has been quite down. Her legs hurt along with her tummy and this week she has just been saying that she feels unwell meaning I have to carry her a lot. It is to be expected so we're not worried about it. Her blood counts are coming down as we want but the good news is that her red count has stayed reasonably high so we've not had to have any transfusions thus far!
Today (Saturday) she seems a lot better. She'll finish her steroids in a couple of days time (thank goodness) and then we'll be back to GOS on the 7th August.
We had a little birthday party celebration for our friends and young Miss Francesca was the baker in charge of making the cakes. Despite her general discomfort she seemed to enjoy it.
It has to be said that Fran really has embraced her understanding of Leukaemia. Last week I told her that one of her friends couldn't come round to play as they were quite poorly her response - "Well Mummy they might have a cold, but I've got Leukaemia!!!!" - Taking it to the max, that's my girl!!!!!
No comments:
Post a Comment