Back on the Protocol then back to Lewisham - dismay!

Last week we managed to make it up to Great Ormond Street and Fran was able to have her lumbar followed on Friday by vincristine at Lewisham - whilst she isn't looking too hot at the moment as a result the good news is that we are back on course with her protocol.

She also surprised us last week by not having an immune system which in turn made us far more cautious about where she plays etc. With chicken pox and measles rife here we don't want to take any risks. As a result Fran didn't make it back to school post chicken pox as she has been quite post viral and low. We did attempt to get to her sports day but her legs were hurting so she only managed to run in one relay before coming home.

Yesterday (Tuesday), Francesca spiked another temperature and so we find ourselves yet again, in the hottest week so far, stuck in a hospital room. They seem to think that she may have a chest infection and are treating that with IV antibiotics. We are also waiting for the results of blood cultures which may tell us if she has another line infection - it almost seems inevitable. When we were at GOS last week we were warned that should she get another line infection it would mean that she will have to have it replaced (not a nice procedure). I will keep you updated.

As usual, she takes it in her stride and, although upset at the thought of being back at Lewisham she still puts on a brave face. Even with a temperature of over 39 she manages to play and show us grown ups how amazing children are. A couple of days ago I managed to get her rapidly growing hair into two small bunches which she is so excited about and so this morning it was the main task of the day! I'll get pictures and post them.