Quick Update and LONG awaited photos!

Over the last couple of weeks we have popped up to GOS a couple of times with Fran. The first visit was a scheduled one to meet with Nick and to talk about her continuing line infection - we agreed that if it didn't clear up then the line would be removed and she would finish her treatment without it. Fortunately her blood cultures are negative meaning the infection is now gone... Thank Goodness. Yesterday we went up again for Francesca's vincristine and to chat again with her consultant about restarting the steroids. She'll be taking a slightly different steroid and we hope that by doing so, she will not suffer the major side effects she has in the past.

Fran has been well in herself but post her chemo this week has a bad upset stomach and the usual leg and arm pain....

The other piece of news is that Starlight will be using Francesca's photo in their newsletter - she is also on their homepage - take a look.

Anyway, here are the long awaited photo's showing Christmas, cousins, friends and top hats! Enjoy.

Christmas and Into 2009

Two days before Christmas the hospital called to let us know that another infection had reared it's ugly head. Fortunately Francesca was feeling well so we only needed to have daily antibiotics at home - much to our relief!


Christmas was Fantastic - lots of fun was had by the children and despite Fran's continued antibiotics we had an amazing day, lots of food, wine and gifts! Santa was generous to all!


Fran has now had another ten days of the iv antibiotics but it hasn't cleared her line - they are now locking the antibiotic into her line and we are really hopeful that it will do the trick. Fran has been generally well in herself but today is feeling very "wobbly" and has suffered with her usual aches and pains - possibly due to the infection. If the infection isn't clear in the next ten days then GOS would want to remove it :-( .


We have had some good news though. Last Monday Francesca had her long awaited MRI scan up at GOS and, as we understand it nothing sinister was found which is good news. We are going up to Great Ormond Street on Wednesday for Fran's chemo and will chat to Nick then about further management of her leg pain and the start of the dreaded steroids!!!!